• its_prolly_fine@sh.itjust.works
    link
    fedilink
    English
    arrow-up
    162
    arrow-down
    3
    ·
    3 months ago

    Aaaaaand sometimes is a “controlled substance” so you have to get a new prescription every month. No 90 day supply, refills, or auto renew. 🥲

    • Promethiel@lemmy.world
      link
      fedilink
      English
      arrow-up
      77
      arrow-down
      2
      ·
      3 months ago

      What’s that? You can message through the app to refill all the other ones easily but not the magic one requires calls and in-person visits to remember and juggle? Cool cool cool.

    • agent_flounder@lemmy.world
      link
      fedilink
      English
      arrow-up
      31
      ·
      3 months ago

      Fortunately they can write up 3 Rx and then send to the pharmacy every month until my next appt.

      Of course my pharmacy can’t get the stuff due to the shortage so I have been without for 2wks now. It’s a process to have the Rx sent over to a different pharmacy. Easy for someone normal. But ADHD without meds? Yeah.

      • NightAuthor@lemmy.world
        link
        fedilink
        English
        arrow-up
        4
        ·
        3 months ago

        But with CVS at least, they won’t schedule out the fill, only place the second and third on hold on your profile. So you have to call and ask them to fill it 2/3 months , can’t do that part on the app either. So to have a continuous supply, you’ve got to do go doctors appointment, then pick up meds on first month (assuming no complications, there are always complications)… then the next two months you have to call like 28 days after your last pickup, ask them to fill, and pickup within 2/3 days.

    • xpinchx@lemmy.world
      link
      fedilink
      English
      arrow-up
      25
      ·
      3 months ago

      I fucking hate this, and I moved so now my doctor is 30 minutes away. I could find a new doctor but, you know… adhd

    • You999@sh.itjust.works
      link
      fedilink
      English
      arrow-up
      23
      arrow-down
      1
      ·
      3 months ago

      I can deal with calling to get a new prescription every month but all the other bullshit that comes with my medication being a controlled substance is what I fucking hate. Oh we are sorry but your prescription is out of stock because the DEA is worried about diversion… Oh and don’t call other pharmacies because you are shopping pharmacies and now we are going to flag you…

      • OftenWrong@startrek.website
        link
        fedilink
        English
        arrow-up
        24
        ·
        3 months ago

        Also god forbid you might need to refill early if you’re going out of town or something. I knew they’d get weird about that so I just refilled it late when I got back and they made me piss in a cup for two months in a row. For refilling late because that could indicate I was selling it apparently??? I still get so upset remembering it. I can’t believe how they’re allowed to treat us sometimes.

        • You999@sh.itjust.works
          link
          fedilink
          English
          arrow-up
          7
          ·
          3 months ago

          I think that’s a sign you are selling because if you aren’t taking your medicine to sell it then it becomes a touch harder to remember when you are supposed to actually be out (which completely ignores how ADHD effects people)

    • pete_the_cat@lemmy.world
      link
      fedilink
      English
      arrow-up
      22
      ·
      3 months ago

      Stratera actually isn’t a controlled substance since it’s not a stimulant (it’s an NRI), but my Ambien is, so I know the pain. It’s literally easier for me to get legal weed in multiple states around me than it is to get Ambien, which I’ve been taking for like 20 years.

      • OftenWrong@startrek.website
        link
        fedilink
        English
        arrow-up
        24
        ·
        edit-2
        3 months ago

        Ritalin is the only medication I’ve taken for the last 15 years and I stg someone still fucking hassles me at least once every few months. Either it’s insurance, the doctor, or the pharmacy. Someone ALWAYS makes it a pain in the ass. It’s beyond absurd how many hoops I still jump through after over a decade of the same dose of the same medication.

        • AngryCommieKender@lemmy.world
          link
          fedilink
          English
          arrow-up
          19
          ·
          3 months ago

          Adderall here, and yeah it’s nuts how much I have to fight to get the shit I have been taking since I was 10? 12?, I dunno when it’s been a few decades

          • MrShankles@reddthat.com
            link
            fedilink
            English
            arrow-up
            10
            arrow-down
            1
            ·
            3 months ago

            Pre-authorization gang! Doesn’t matter that I’m regularly prescribed by the same doctor for over 10 years… my insurance wants to double check once a year to make sure it’s still “medically necessary”. Like yeah, my ADHD might just fucking go away one day. I fucking wish it would ya assholes, but could we not hold my script for 3 extra days, every year, just to “make sure” I’m not cured‽

    • Loonesota@lemmy.world
      link
      fedilink
      English
      arrow-up
      15
      ·
      3 months ago

      I have to renew mine every 28 days… Because it’s so incredibly dangerous that they don’t trust the public with any longer prescriptions. I hate it but ahhh, the things I do for that juicy methylphenidate…

    • OftenWrong@startrek.website
      link
      fedilink
      English
      arrow-up
      10
      ·
      3 months ago

      Aaaaand if your doctor gets a stick up their ass they can humiliate you with piss tests all they want and you can either endure it or go back into the unmedicated TV static 🥳

      • its_prolly_fine@sh.itjust.works
        link
        fedilink
        English
        arrow-up
        7
        ·
        3 months ago

        That’s terrible! Thankfully I’ve never had a Dr give me a hard time for ADHD meds. Is there any chance you could see a different Dr in your area? You don’t deserve to be treated like that.

    • can@sh.itjust.works
      link
      fedilink
      English
      arrow-up
      8
      ·
      3 months ago

      That’s harsh. It’s controlled where I’m from but that just means I can’t refill on day 89.

      • its_prolly_fine@sh.itjust.works
        link
        fedilink
        English
        arrow-up
        20
        ·
        3 months ago

        Oh my God dude it’s such a pain! Also I can’t refill on day 30. I have to be completely out, but the pharmacies don’t open until 9. So if you need to be a work at 9, you get to pick between being late for work or nit taking medication. 🙃

    • Conyak@lemmy.tf
      link
      fedilink
      English
      arrow-up
      7
      ·
      edit-2
      3 months ago

      You can get it for 90 days. At least you can get Adderall for 90 days at a time.

      • frogfruit@slrpnk.net
        link
        fedilink
        English
        arrow-up
        8
        ·
        3 months ago

        Where? I get my prescription renewed every 90 days, but it has to be sent as 3 separate prescriptions, and you have to wait at least 28 days in between filling each one.

        • Conyak@lemmy.tf
          link
          fedilink
          English
          arrow-up
          4
          ·
          edit-2
          3 months ago

          I’m in Idaho. I started on Adderall last year and it gets called in for a 90 day supply each time. My doctor told me that 90 was the max he could do for a controlled substances. The restriction on refilling mine is basically 2 - 3 days before the 90 days is up.

  • Cyrus Draegur@lemm.ee
    link
    fedilink
    English
    arrow-up
    97
    arrow-down
    2
    ·
    3 months ago

    i understand the sentiment and I appreciate the irony but medication is only as much a ‘cure’ for ADHD as ‘having no legs’ can be ‘cured’ by a wheelchair.

  • sanpedropeddler@sh.itjust.works
    link
    fedilink
    English
    arrow-up
    58
    arrow-down
    1
    ·
    3 months ago

    Stimulant medication isn’t a cure, you don’t have to take it every day, and it doesn’t matter when you take it as long as its far enough away from when you sleep.

    • Flying Squid@lemmy.world
      link
      fedilink
      English
      arrow-up
      14
      ·
      3 months ago

      Nonstimulant medication is also not a cure. There is no cure for ADHD. It’s like saying there’s a cure for schizophrenia (not comparing the two as issues). Some things don’t get cured, they just get the severity lessened.

      • supersquirrel@sopuli.xyz
        link
        fedilink
        English
        arrow-up
        2
        arrow-down
        3
        ·
        3 months ago

        The thing that needs to be cured is the dizzying array of forces aimed at crushing ADHD people to pieces, at least in the US (can’t speak for other places).

        You ever look at the number of people in jail with ADHD? Society is trying to kill us off I don’t really think there is another sober read of the statistics.

        In other words there is a cure for ADHD to a large extent but it doesn’t involve curing the person with ADHD.

        • Flying Squid@lemmy.world
          link
          fedilink
          English
          arrow-up
          2
          arrow-down
          1
          ·
          edit-2
          3 months ago

          I agree 100%. People who are neurodivergent are demonized and treated very unfairly and it’s disgusting.

          • argv minus one@mstdn.party
            link
            fedilink
            arrow-up
            2
            arrow-down
            1
            ·
            3 months ago

            @FlyingSquid @supersquirrel

            It’s tribalism. “If it looks like a person, but it behaves differently from me, then it’s an outsider or a defect. Either way, it’s bad for the tribe, so get rid of it.” Definitely one of humanity’s darkest traits.

            • Flying Squid@lemmy.world
              link
              fedilink
              English
              arrow-up
              2
              arrow-down
              1
              ·
              3 months ago

              I think it goes beyond tribalism. It’s about a baseline of normality society has come up with in recent times. People with ADHD and autism weren’t treated as complete others before those diagnoses existed. They were considered eccentric, but not considered “different from the in-group.”

      • saruwatarikooji@lemmy.world
        link
        fedilink
        English
        arrow-up
        13
        ·
        3 months ago

        I’m not sure why you got downvotes… You’re correct. Some of the pills do absolutely affect arousal and libido.

        • MadBigote@lemmy.world
          link
          fedilink
          English
          arrow-up
          3
          ·
          3 months ago

          I was medicated with an Adderall-like pills back in my college years and it was AWFUL. My peepee was flaccid for more than a year. Had to stop taking the medication for my well-being.

            • MadBigote@lemmy.world
              link
              fedilink
              English
              arrow-up
              1
              ·
              3 months ago

              The limpness is one of the problems with those medications. First you lack libido. If you feel like rubbing one out, though, you won’t be able to get it hard. And IF you manage to get hard, at least a bit hard, you won’t be able to ejaculate.

  • pete_the_cat@lemmy.world
    link
    fedilink
    English
    arrow-up
    37
    ·
    3 months ago

    I could never remember if I took my pills, so I bought one of those weekly pill organizers. I used it for a few weeks…But now I don’t feel like filling it up each week, so I just take them in the morning when I go to the bathroom… Then later on in the afternoon I wonder if I have taken my pills because I was on autopilot in the morning.

    • Boddhisatva@kbin.social
      link
      fedilink
      arrow-up
      22
      arrow-down
      1
      ·
      3 months ago

      When I go to bed I put my pill bottle in one place. When I take the pill in the morning, I put it in a different place. I’ve considered buying one of those timer bottle caps. They fit generic pill bottles and have timer built into the top. You can look at the timer and see how long it’s been since you opened the bottle last.

    • agent_flounder@lemmy.world
      link
      fedilink
      English
      arrow-up
      12
      ·
      3 months ago

      I would go nuts or od if not for the pill organizer. Refilling sucks. But I sigh loudly every Sunday and manage to do it lol

      • MelodiousFunk@slrpnk.net
        link
        fedilink
        English
        arrow-up
        7
        ·
        3 months ago

        I am currently sitting on the edge of my bed, scrolling, and most definitely not starting the ritual of opening a half dozen pill bottles, divvying them up for the week, and then opening one more bottle and going through the hassle of cutting some in half to get the right/current dose.

        One of these hours that will change. Probably when the bladder starts screaming.

    • Krackalot@discuss.tchncs.de
      link
      fedilink
      English
      arrow-up
      11
      ·
      3 months ago

      Don’t bother filling it. Close it at the end, and pop open the lid for each day. I keep my pills in the bottle.

          • Queue@lemmy.blahaj.zone
            link
            fedilink
            English
            arrow-up
            9
            ·
            3 months ago

            Mate I’ve forgotten the concept of eating food, I’ve misplaced my phone that I was holding 30 seconds ago, I’ve not been able to recall every card in any of my magic the gathering decks from memory ever since I started playing about 10 years ago.

            I’ve forgotten what I was talking about mid sentence because I had to get a sip of water. You can forget about anything with ADHD, just different people remember things differently. I can recall my partner’s favorite colors and hobbies, I can barely recall my own favorite media I saw.

        • MrBusiness@lemmy.zip
          link
          fedilink
          English
          arrow-up
          1
          ·
          3 months ago

          What about those fidget popping things? Label each with a day press in the day when you take a pill. Then just flip it over when the week starts over.

        • xkforce@lemmy.world
          link
          fedilink
          English
          arrow-up
          1
          ·
          3 months ago

          I keep a bottle of Irn Bru or something else too revolting to forget washing the pills down with next to the pills.

        • Krackalot@discuss.tchncs.de
          link
          fedilink
          English
          arrow-up
          1
          ·
          3 months ago

          I don’t! I also have a task reminder, and I sometimes still forget. I finally got every day one week in December. Then, 5 weeks later, I missed every day. It sucks!

        • MrBusiness@lemmy.zip
          link
          fedilink
          English
          arrow-up
          2
          ·
          3 months ago

          What about those fidget popping things? Label each with a day press in the day when you take a pill. Then just flip it over when the week starts over.

        • Pika@sh.itjust.works
          link
          fedilink
          English
          arrow-up
          1
          ·
          3 months ago

          Not really! because even if you’re on autopilot the next morning you’ll go into the bathroom and you’ll see all of the lids open, there’s no reason that you would have left those Lids open if you took your medication prior which means you haven’t taken your medication yet

          So you just close the lids and only open that day then you take your med

        • Krackalot@discuss.tchncs.de
          link
          fedilink
          English
          arrow-up
          1
          ·
          3 months ago

          On Sundays, I close them all. I also have a calendar task and still forget, it’s just better than without one or the other.

    • brygphilomena@lemmy.world
      link
      fedilink
      English
      arrow-up
      5
      ·
      3 months ago

      I had 3 or 4 of those organizers. I’d fill them all up at once and then only had to remember to do it, while medicated, once a month or so.

    • nessie@lemm.ee
      link
      fedilink
      English
      arrow-up
      5
      ·
      3 months ago

      I bought a replacement pill bottle with a digital timer in the lid that resets when you open it so you can always see how long it’s been since you last took it- it’s been a huge help and managing my medication. It’s called the BudCapTimer or TimerCap. Here’s a link - https://a.co/d/iZJilMh

    • frogfruit@slrpnk.net
      link
      fedilink
      English
      arrow-up
      1
      ·
      3 months ago

      Maybe get a 1 month organizer or a few more weekly ones so you only have to refill once a month. There are also timer lock box or pill cap gadgets.

      • pete_the_cat@lemmy.world
        link
        fedilink
        English
        arrow-up
        1
        ·
        3 months ago

        I attempted to get a month one before, the problem is that they’re huge and take up a lot of counter space.

    • FlihpFlorp@lemm.ee
      link
      fedilink
      English
      arrow-up
      13
      arrow-down
      1
      ·
      3 months ago

      My insurance/doctor told me about focalin and I swear it sounds like some made up ADHD med like in South Park or something

      soothing voice talk to your doctor about Focusil today

      That’s honestly what it sounds like to me

      • LazaroFilm@lemmy.world
        link
        fedilink
        English
        arrow-up
        2
        ·
        3 months ago

        Haha. Pretty much. It’s not perfect though. For me it definitely helps with focusing, staying on task and getting things done but if I take it for too long in a row, I get quicker to anger and more anxious. But a lower dose doesn’t have any positive effects, so I’m stuck choosing which week I want to be efficient and which eeek I want to lean off and chill out more.

    • 30p87@feddit.de
      link
      fedilink
      English
      arrow-up
      5
      ·
      3 months ago

      I need to take two, one before and one after breakfast. That just makes it much more complicated.

        • 30p87@feddit.de
          link
          fedilink
          English
          arrow-up
          5
          ·
          3 months ago

          So, my workflow should look like this:

          • Wake up at 7:29 (One minute before the alarm, because I set it to spotify, it enables shuffle which is hella annoying while driving.)

          • Take 5 mg Medikinet to be able to do basically anything, and drive later

          • Get ready

          • Breakfast

          • 30 mg Medikinet retarded (Which means it just hits later and longer)

          • 10 mg Medikinet retarded in the afternoon, because school is til 5 pm

          It actually looks like this:

          • Wake up at 7:00

          • Stand up at 7:45

          • Get ready

          • 5 mg Medikinet

          • A quarter of a breakfast, because at that point school starts in ~15 minutes with an 18 minute drive

          • 30 mg Medikinet

          • As I did not have time to get a water bottle ready, no 10 mg Medikinet

          But in the end, it doesn’t even matter… because I basically finished school with minimal effort and still got a dual study program

            • 30p87@feddit.de
              link
              fedilink
              English
              arrow-up
              3
              ·
              3 months ago

              My problem isn’t really that it’s too low, but that I forget to prepare water and the 5 mg at my bed before sleep. So I should probably do it in the morning, with Medikinet in my system. Because once I take it, it does work very well, and I notice once it goes back down (as long as I actually do something requiring my concentration). Driving without and with is like night and day. And after noon, especially noticeable in exams, everything drops down.

  • TimewornTraveler@lemm.ee
    link
    fedilink
    English
    arrow-up
    11
    ·
    3 months ago

    Huh? You don’t need to take it at the same time. It’ll just impact your sleep if you take it too late. If you have extended release you just have a smaller window of time. Having a structured routine is an important part of tx anyway

      • fahfahfahfah@lemmy.billiam.net
        link
        fedilink
        English
        arrow-up
        11
        ·
        edit-2
        3 months ago

        Keep the pills next to the bed, take one, then give yourself permission to lie back down. Eventually your meds will start to kick in and itll be easier to get up.

        • BlanketsWithSmallpox@lemmy.world
          link
          fedilink
          English
          arrow-up
          2
          ·
          edit-2
          3 months ago

          Yep. Put the pill organizer on top of your phone. Put the water bottle right next to it. The moment you wake up, meds, then phone.

    • DacoTaco@lemmy.world
      link
      fedilink
      English
      arrow-up
      2
      ·
      3 months ago

      Dont have ahdh, but i do need my routines and i agree with this. Get out of bed, take a glass and take my pills. I will forget otherwise

  • Weges@lemmy.world
    link
    fedilink
    English
    arrow-up
    8
    ·
    3 months ago

    Reading the comments here makes me overly conscious about choosing my word carefully. Say “cure” instead of “medication” and there goes the point you wanted to make!

      • Synnr@sopuli.xyz
        link
        fedilink
        English
        arrow-up
        3
        ·
        edit-2
        3 months ago

        Lemmy is reddit 3.0. Early on, Reddit was basically only a website for tech nerds and misfits; atheism and jailbait were some of the most visited subreddits, idpol and divpol weren’t a make-or-break-your-family issue back then but there were still a ton of terminally online furries (yes if you’re a furry you’re weird, but weird is fine, let that freak flag fly.) I’m including myself in the group of outcasts and misfits, and my freak flag flies in weird ways too. I’ve been on Reddit since the default UI was like this, although it hadn’t changed much over the years before the redesign. Notice the quality of submissions though - it was a place for the intellectually curious.

        But you have a large subset of users who use pedantry and grammar nazi`ism as a way to feel powerful when they’re powerless. It’s like picking on those lower than you, when you’re in the bottom of the pecking order.

        Those people saw reddit go from their bastion of freedom to the corporate ad-haven it is today and all came here. You also have a lot of younger people with the time to kill and are just trying something new.

  • moosetwin@lemmy.dbzer0.com
    link
    fedilink
    English
    arrow-up
    6
    arrow-down
    2
    ·
    3 months ago

    and also you have to take it for two weeks before you get any effects and if you miss a day at any time you have to go through this process again

    • Colonel Panic@lemm.ee
      link
      fedilink
      English
      arrow-up
      4
      ·
      3 months ago

      I’ve been on Adderall XR for over a year and I feel the effects within an hour or two and I’ve missed days and it only seems to make that day and maybe the next a bit worse, but not 2 weeks at all.

      Which one are you on that does that? Ritalin? Vyvanse?

      • meowMix2525@lemm.ee
        link
        fedilink
        English
        arrow-up
        4
        ·
        edit-2
        3 months ago

        I believe most non-stimulants are like this. Strattera can take over a month to fully adjust and for the worst side effects to subside.

        • odelik@lemmy.today
          link
          fedilink
          English
          arrow-up
          1
          ·
          edit-2
          3 months ago

          Strattera gave me stomach issues for 3 months straight and didn’t do shit for my ADHD symptoms. Finally went back to stims afterwards. At least with stims I either forget to eat or am disgusted by the thought of eating, but if I do eat, my stomach doesn’t feel terrible.

          • meowMix2525@lemm.ee
            link
            fedilink
            English
            arrow-up
            2
            ·
            edit-2
            3 months ago

            Yeah unfortunately it’s not right for everyone but for me personally it is like night and day with giving me back some executive function, working memory, and impulse control. Stims just made me hyperfocus on everything, including vices like social media, without any real motivation to devote that energy to whatever I was putting off. Especially if it wasn’t already right in front of me. I also had to be careful about tolerance cause I didn’t want to just chase a high but I wasn’t feeling productive at all once my body started to adjust to it. I tried to take weekends off but that just meant I wasn’t getting any chores done at home.

            Theres only a couple bad side effects for me with strattera on the end of my second month in. The fatigue, which is honestly just a really intensely calm feeling that makes it hard to want to stay upright and awake, and I think that is actually getting better the longer I take it. The nausea when I take it on an empty stomach, though, really messes with my routine and eating habits since I really don’t like to eat first thing in the morning and that seems to be the most effective time to take it.

            I’m just kicking myself for not giving non-stims a shot while I was still in college.

            • odelik@lemmy.today
              link
              fedilink
              English
              arrow-up
              2
              ·
              3 months ago

              I’m glad I tried.

              But I’m also doing so much better now and a 15mg Adderall xr does has been working great for 2 years now. I also found a job that follows my passions and I’ve been able to channel the hyper focus and drive to build and keep a schedule for work. The last step is to reintegrate my fitness hobby (cycling) back into my life and I’ll be back to where I was before some asshole manager from my previous job caused a mild panic attack in me and things broke down.